He Is Risen!

He Is Risen INDEED!

Praise the Lord for Resurrection Sunday!

I also praise my Lord and Savior for Good Friday, for it were not for that day we could not celebrate the empty tomb.

Easter fills my spirit with hope. Despite the trials we have gone through, my confidence in God has never wavered. I have often wondered at the peace people have found through tragedy, but have never questioned God’s sovereignty. Deep in my soul, I have always been sure that no. matter. what. God is still God and He is GOOD. I also know that I will NEVER fully understand His ways, but the freedom I have in knowing He is in control gives me a peace that I cannot explain, yet I know I can trust.

My heart is filled with anticipation this Resurrection Sunday. I pray that you too may know Him as your Savior this Easter.

God Bless!

Our Easter Scavenger Hunt
We actually did two scavenger hunts. One which I gave a link for last April which takes the kids through the different events leading up to the crucifixion and ending with the empty tomb, and then a hunt for chocolate!

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Easter Bread (a.k.a Paska)IMG_4559

March

Buddy. Whenever we drive anywhere, you ask how many more towns there are until we reach our destination, and then you proceed to pay attention to how many towns we pass. On our more familiar routes, you have the towns memorized and know when we are getting close. This month we finally had some really nice weather and after a few days of such weather we woke up to snow. Buddy, your response was very Canadian, “Oh, now we have to wait another year”. You poor thing. Trust me, Buddy, spring. is. coming. even though the calendar was wrong about it again this year, it will come eventually…

Blondie. My heart just melts when I think of you. You have been through so much these last few months. Every once in a while I get a glimpse of how you are seeing things and are trying to deal with this new normal, and I wish I could make everything better. But over and over we have seen how good God is, how He answers prayer, and is always with us, and for that I am so thankful. You have blessed and encouraged me in so many ways as you keep thinking of others and keep asking to pray for those around you. Another thing that is so evident is how you and Buddy are two peas in a pod. Neither one of you knows what to do with yourselves if the other is away. If your Dad is ever going somewhere and plans on taking someone, I beg him to take both of you or neither of you.

Happy. Happy. Happy. Happy. Joy personified. You are not just sweet like sugar, but sweet like ooey, gooey, sticky caramel that once it’s on you, it’s everywhere. You are my side-kick. Your broom is now stored in the closet with my broom. You have your own kitchen cloth at the sink. You know how much soap to put in the washing machine. Whatever I am doing, you are right beside me trying to do the same. It’s like looking in a mirror. You are more fun than I know what to do with, but you are such good medicine for me. One cannot stay upset long if you are around…

Button. You are rolling everywhere. You are also nearly getting up on your hands and knees. FOOD! You love food! There is nothing I have tried to feed you that you haven’t liked. If we dare try to have a meal without you, you yell at us until we give you something to eat. My highlight this month was when I was playing peek-a-boo with you in the car and you started laughing hysterically. In the past, I had seen videos of babies laughing like crazy at the silliest things and I always wanted a baby that laughed like that. Well, when you started laughing like that you made. my. day. little girl.

More than a week

It would probably be most accurate to say that the stress has been building for months now. Ever since we learned of Blondie’s hemophilia. Sometimes I noticed the stress getting to me, other times I could brush it off and think it wasn’t real.

Well, it’s real and it’s getting to me.

Last week I came across a post entitled, ‘a week defeated’ by Hannah at A Quiver Full Blog. It was just what I needed to hear.

This is where I have been finding myself lately. If only it was just a week…

Well, it’s been longer than that.

I have been believing lies, and it’s a joy-less place to find yourself in.

But, I don’t have to stay there. And I’m working at taking back the joy and life that has been stolen from me.

The thief does not come except to steal, and to kill, and to destroy. I have come that they may have life, and that they may have it more abundantly. John 10:10

 

Tobogganing

We hardly got out at all this winter to go tobogganing, but we finally made it out one cold day this month.

Buddy didn’t slow down once. He raced up and down the hill.
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Blondie isn’t convinced tobogganing is his thing yet, so he hung out with me for a bit. The jury’s still out on that one…
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Like I said, he was running up the hill. He was beat by the time we were done.IMG_4289

 

I think Happy only came for the hot chocolate.

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Button is just about as happy as Happy, and I’m pretty sure she can’t wait ’till it’s her turn to go down the hill.
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Yes, they all went down together..IMG_4293IMG_4279

February

Buddy. When I think of you, I smile. What a pleasure you are to be around. You are so willing to help and you care so much for people. Sometimes I’m too hard on you because I think you’ve heard me or that you understand what I’ve said. I’m sorry Buddy for not being clear enough and making sure you understand. Lately, we’ve been talking about doing our best, and you’ve been trying your best at school, having self-control, and not giving up. You challenge me to be a better person. You and Blondie play so awesome together and you even let Happy play with you (most of the time). Button loves you. You are so good at making her laugh.

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Blondie. Funny moment of the month for you: your dad was reading you guys a story and you suddenly said to him, “I have to go to the bathroom, pause it!” Clearly you need to watch fewer movies… Besides that, I quite simply can’t get over how amazing you have been with getting your infusions. Wow. Your dad and I’ve been practicing a lot because we are planning on being able to give you your infusions at home. You have been very involved in the whole process, helping us clean the site, put on the tourniquet and the band aids. So far, your Dad and I have both had the chance to give you your infusion when we were in the city for training, and it’s been going very well.IMG_4079 (1)

Happy. Your dad and I struggle to keep a straight face around you. Your antics are something else…and you know it… You have what we now call your ‘evil laugh’ which is quite nearly impossible to describe, but cracks us up every time (and on some level makes me worry about what is yet to come). You and Button are the only ones who nap anymore, and the three of us lie down together while I try to convince you to go to sleep. What a goof you are, but was a sweet time it is. I love singing “Twinkle, Twinkle Little Star”  and “Jesus Loves Me” with you and watching you fall asleep. I hope I never forget those blue eyes slowly closing as you finally stop moving and relax for a while (a very short while). The other funny thing you’ve been doing lately is referring to Button as “my chubby little baby”. Who can tell me what she’s got herself into in the picture?IMG_4253Button. Oh my, this month we are jumping in the jolly jumper, trying different foods, and making me wonder more and more what you are going to be like. You are such a happy child with bright eyes that follow our every move. You love your daddy (not to mention your siblings) and you get so excited whenever he stops to talk to you. I could cuddle you all day…IMG_4239IMG_4244IMG_4169IMG_4129IMG_4009

More On Hemophilia

Seeing as I haven’t gone into much detail regarding hemophilia up until this point, here is a link to find out more. One thing that differs from the information given is that it states that hemophilia is inherited from the mother. While that is true, 1/3 of hemophiliacs result from a new and spontaneous mutation. At this point, we still do not know if I am a carrier or not (we have no family history) and we are awaiting DNA results. So the mutation occurred in either myself or Blondie, but that is still to be determined.

As for Blondie, he is doing great. He is still on twice a week prophylaxis, but he has no qualms about it. It’s become normal and much less of a stress to deal with. What a blessing that is to my heart that he is relaxed about it. We are now learning how to give him his infusions at home.  I get quite the responses when my husband and I joke that while we might not get out on dates much, for ‘fun’ we now sit at home and take turns practicing our venipunture techniques (we take what we can get).  Blondie thinks it’s great. Not only is he not getting the pokes, mom is poking dad.

Just last week he got a custom brace for his left leg to try to protect from another knee bleed. Next month he is having an MRI of his knee. While we still hope that after his MRI we might not have to continue with prophylaxis, we want to be prepared to do it at home, and so far things are looking good.

As for the rest of us, we have been doing our best not make a huge deal out of Blondie’s situation, but to include everyone as much as possible. This certainly can be a challenge sometimes as we want to avoid extra trips to the hospital, yet don’t want to become overprotective (we’re still working on this).  And in the name of our new ‘normal’ (not to mention making things easier by not having to arrange childcare), this month the rest of the kids began coming along to Blondie’s infusions. The kids handled it well, and their responses to seeing their brother get his injection were really neat. They have a new appreciation and respect for what he has to go through, and it certainly feels like we are in this together.

Though we still have many questions (the biggest of which seems to be to what degree to attempt to bubble wrap the little goofball) and we don’t know what circumstances we will have to deal with in the future; we know we serve a God who will never forsake us, is our strength when we are weak, and gives peace beyond understanding.

January

Buddy. I still can’t get over how fast my little boy is growing up. I truly enjoy you and being around you. When you set your mind to it, you are a focused determined boy, and other times the slightest thing can distract you. You are an excellent imitator (just like your dad) and you are so animated when you recount things. I love hearing things from your perspective. This month you got your first goal during a hockey tournament. You were so excited! You’ve also almost got a few more goals. Good job little man! I still think you like hockey more because you get to see your buddies than for the game itself, and that’s good with me.

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Blondie. One day you asked me if you had to get a needle the next day. I said, “No, not tomorrow, the day after”. You paused, thought for a moment and then said, “In two tomorrows?” I love how kids see things! After one of your last infusions, I was so impressed by how calm you were. When we were walking out to the car, I asked you if you were scared. You said, “No, mom, I wasn’t scared”. Wow. Thank you God, for being our strength and for ministering to Blondie through this whole thing. Blondie you love your baby sister. You still ask to hold her all the time and you take such good care of her. You can easily make her laugh and it’s easy to see that she thinks you are pretty awesome!IMG_3939

Happy. It’s official. I can’t keep up with you. This month we finally managed to move our piano from our rental property to our place and you love it. You’ve watched me play a few times and now mimic me move for move. You sit at the bench, play a bit, sing at the top of your lungs, then proceed to lick your finger and turn the pages while repeating the process. Love. You are also going around singing all the songs from the boys’ music lessons, but sometimes you get the words mixed up a bit. This month, according to you, the song went, “I’m a little monkey, peanut butter sandwich!” We finally managed to teach you to ask for a “Kleenex”, up until now, you would say, “I need a booger.” You’ve watched me put on make up and lip gloss and always want to put a bit on as well. I often find you rummaging in my purse looking for “lips lips” (lip gloss).  “Kwiss” means “kiss”. When asking for something you say, “May I you please…” You are way too sweet…IMG_4032

Button. You are rolling!!! Both ways! This is ridiculous! You are pretty impressed with yourself though. Your brothers and sister think it’s your new trick, and they are right. We sit there watching you roll just for fun. You have also discovered your tongue and like sticking it out. What a goof…IMG_4013